As you can see, my little butterfly got to enjoy her fireworks last night. It was her one concern. Not that she got her colon removed, not that she has a fever, not that her heart rate is too fast, not that she has pain with every movement. Nope, she was worried she'd miss the fireworks! So, we flipped on PBS and watched the over our Nations capital. It was wonderful to watch them while listening to the sounds of the symphony.
Some of our picture looks better today. We have pain under control with some additional meds, temps are down with the help of meds too. A few labs have improved and others have gotten worse. A little of this and a little of that, but overall we are on the road and moving the right direction.
4 comments:
I'm so glad she was able to some of the usual 4th activites.
I love her eye mask. I was seriously thinking a couple of days ago that I would like one.
That is so great she could watch them!
The TV in her room is AWESOME! Way better than our children's hospital here. You always find a way for your Butterfly to have her dreams. Sorry for all the ups and downs, and I hope the trending keeps going the right direction. You are daily, (many) in my prayers
Hey she has priorities man! LOL
So glad they play them on TV. We did not attend any shows, just stayed home (due to the back) but it was lovely family time as I am sure your day was filled with a mother's love and a daughter's gratitude.
Hope you are holding up ok Holly.
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