I figured I'd give you a small glimpse into our lives here in room W501.
This is where sleep....

I actually sleep here part of the night and in the recliner for the other couple of hours. Then there are the times I crawl up in bed with her if she needs me to, but anymore there are just too many tubes and wires to do that with much ease. She's not such a big fan of it anymore either.
Here is here bed and space... she loves the TV on the boom and all her "stuff" close by.

This picture gives you an idea how big our room actually is....

Since we are frequent flyers they let us have the big room. It's really nothing other than a big room. Everything else is the same. It's nice and quiet though and it's the only room in the ICU where the big glass doors don't face straight in the entire room for all to see. I like that feature when I'm sleeping. It's hard enough to sleep knowing someone is in the room and watching/hearing you as you sleep. Always hoping I'm sleeping quietly and not in some weird position or flung all over the place, shirt all scrunched up to my neck or whatever.
Anyhow, those are our digs as of now. Lovin the comments. Thanks so much for all your support.

6 comments:
I am glad that you have a big room. I am also glad that temps are better.
I'm glad you posted pictures! That sofa looks tiny!
Hoping Butterfly improves steadily day by day. Sending you both giant gentle hugs!
Thanks for sharing pictures of your other "home". I LOVE that Butterfly is sitting up! Praying that everything starts to trend the right direction. Down with the fever, up with her own blood, you know what I mean!
I bet you are exhausted. That couch does not look comfortable. I hope each day is better than the last for your little girl!
Well, it is one of the nicer rooms I have seen but still not home. Love the sunny yellow color!
Hope you are getting some rest and she improves daily!
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